Friday, August 3, 2012

Unsure

August 3, 2012

Not sure of current weight.

We got off track on K's weight because I really got discouraged.  In one day she gained 3 pounds and I just couldn't figure out where from.  I was driving myself crazy over this when I felt like I was putting in all this effort only to send her back to her mom in 5 weeks to have her gain it all back because her mom could care less about her diet.  As K once put it "My mom doesn't like it when I go on a diet".  Nice, huh?

Well, yesterday we got the call I had been wondering if we would get.  Her mom called us to tell us not to send her home, that she couldn't deal with taking care of her and we needed to just keep her.  So, here we are!  I am going to do some more research and really try to hone her diet.  My husband is going to take over the exercise side of things for the most part.  We are enrolling her in a new school out here where we live so it should be interesting to see how they adapt to her challenges.

I feel renewed because for once we won't have to worry about a lack of effort (or outright sabotage) from the other parent.  We can just do what's best and hope for lasting results.  I have also begun to work on getting her on state medical insurance and beginning the process for SSI.  I submitted several records requests today (things I had already done once before and left for her mother to do, which she did not do and now has the records and is refusing to send us anything...).  So, I am starting again.  I feel better that I can control this all because I think it really needs to be done in an organized and efficient manner.  This truly is what is best for K. 

In the coming days, weeks, and months I will not only be updating about diet and exercise, but about the paperwork process of getting all of her stuff handled (SSI, guardianship {she's almost 18}, medical, etc.) and just general life with PWS.  Thanks for sticking with me!

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