Challenges

Current weight: 161.2

Weight lost: 14.8



While K has lost quite a bit of weight and I am proud of that, there are so many challenges that just crop up with PWS.  You get into a routine, you think everything is going fine and then BAM!  You discover something that makes you change everything about what you were doing.  This is how it always happens in our house with PWS.  Seriously, it's almost something I can count on.

Today while I was changing the sheets on K's bed, I discovered a pile of wrappers of food she had collected  from various places around the house, eaten, and stashed the wrappers.  I was surprised and not surprised at the same time.  We shop at Costco and since the girls moved in with us, we had to squeeze everyone in our apartment and so have had to go from storing our Costco foods in my office (now K's sister's room) to our bedroom.  There is no room in the kitchen or pantry.  So, we put them up super high thinking there was no way she could reach them.  Unfortunately we were wrong.  So I think the plan at this point is to go buy a door handle with a lock and key and swap out our doors.  Also, her sister is going to have to keep her back pack in the kitchen or our locking bedroom from now on since she can't seem to remember to get the food out of it before K goes in her room and searches through her stuff for food.  I was wondering why with the extra activity of having 2 PE classes at school her weight loss had significantly slowed.  I guess now I know.

I am so very frustrated and tired and it can be so incredibly difficult from day to day.  Of course I will march on because that it was I have to do, but today is just a day where I feel down.