Tuesday, August 14, 2012

Progress!

August 14, 2012

Current weight: 163.4
Total weight lost: 12.6 pounds

I haven't been following a strict diet at this point (I do watch what she eats, portion control, etc., but I haven't been writing everything down) and we haven't been doing a ton of exercising lately.  She still walks the dogs 3 times a day and helps out with her little sister, but outside of that she spends quite a bit of time on the computer.  I just have been so busy lately between getting them registered and ready for school, requesting medical records, making tons and tons of phone calls trying to get their insurance done and SSI started, plus trying to get her on the wait list for The Resource Exchange for housing funding (current wait is 7-10 years) I just haven't had a lot of time to stay on top of her exercising.  That's why when I weighed her this morning I was so shocked: She had lost 12 1/2 pounds!  We must be doing something right at this point.  I even weighed her twice just to be sure.  I am so happy about this progress.  She has lost almost all the weight she gained while living in Washington this past year.

Things have been a bit difficult lately just trying to get settled.  We don't like the schools in the dictrict we live in, so we had to apply to get the kids into the next district over.  But, they don't want to go to the same school.  We already got the younger girl registered, but we are waiting to hear if K got in.  I imagine it is more of a process because of her special needs.  I hope we find out soon, though, because school is scheduled to start this Thursday.  I don't imagine she will be starting on time.

I also have sent requests for all her medical records to Seattle Children's Hospital, The Everett Clinic, and the University of Washington Medical Center (where the PWS clinic is located).  I am still waiting for all the records to come back.  So far I have only received a copy of her IEP.  I needed this to include an IQ score for The Resource Exchange (as they will only accept you based on IQ score...) so now I have to wait until she gets into school and then request that the school perform a full IQ test.  It seems like every time I get something done or I get answers about something, I come across more and more that needs to be done.  So far this whole thing has been never-ending.  Once we get her medical situation sorted out, we will have to establish her with a new primary care and then have them fill out paperwork for her SSI.  Unfortunately, all the physicians she was established with in Washington haven't seen her in a year (...) and so they will not fill out the paperwork.  Once I get everything gathered and sorted out for all of this, it will be about time to begin guardianship paperwork.  Sigh.  Makes me tired just thinking about it.

Friday, August 3, 2012

Unsure

August 3, 2012

Not sure of current weight.

We got off track on K's weight because I really got discouraged.  In one day she gained 3 pounds and I just couldn't figure out where from.  I was driving myself crazy over this when I felt like I was putting in all this effort only to send her back to her mom in 5 weeks to have her gain it all back because her mom could care less about her diet.  As K once put it "My mom doesn't like it when I go on a diet".  Nice, huh?

Well, yesterday we got the call I had been wondering if we would get.  Her mom called us to tell us not to send her home, that she couldn't deal with taking care of her and we needed to just keep her.  So, here we are!  I am going to do some more research and really try to hone her diet.  My husband is going to take over the exercise side of things for the most part.  We are enrolling her in a new school out here where we live so it should be interesting to see how they adapt to her challenges.

I feel renewed because for once we won't have to worry about a lack of effort (or outright sabotage) from the other parent.  We can just do what's best and hope for lasting results.  I have also begun to work on getting her on state medical insurance and beginning the process for SSI.  I submitted several records requests today (things I had already done once before and left for her mother to do, which she did not do and now has the records and is refusing to send us anything...).  So, I am starting again.  I feel better that I can control this all because I think it really needs to be done in an organized and efficient manner.  This truly is what is best for K. 

In the coming days, weeks, and months I will not only be updating about diet and exercise, but about the paperwork process of getting all of her stuff handled (SSI, guardianship {she's almost 18}, medical, etc.) and just general life with PWS.  Thanks for sticking with me!

Friday, July 20, 2012

Day 12

July 20, 2012

Current weight: Uknown
Weight lost: Unknown

Lunch:
1 spaghetti and meatball lean cuisine (270)
1 Cascade Ice (0)
Total: 270

I did not weigh her this morning as she came back from her grandma's after breakfast.  I normally weigh her first thing in the morning before she eats anything in order to keep her weigh ins fairly consistent.  From what I can tell of what she ate yesterday (according to K so take it with a grain of salt)... she had pizza for dinner with fruit snacks, grandma took her out for ice cream and they sat around watching TV and movies all night.  This morning she had cocoa puffs and I know her grandma uses 2% milk only so she had that also.  I asked her if she got into the kitchen at any time while there and she said no but who really knows.  I am not hopeful about her weight tomorrow morning.  We shall see how it turns out.

Thursday, July 19, 2012

Day 11

July 19, 2012

Current weight: 169.8
Weight lost: 6.2

Breakfast:
1 c Cheerios (100)
1/2 c 1% milk (50)
1 medium banana (105)
Total: 255

Lunch:
2 c Progresso light clam chowder soup (200)
1 packet Craisins (100)
1 Cascade ice (0)
Total: 300

Finally she has started on a downward trend again.  I hope we continue on this trend.  Even if she only loses a little at a time, I just want her to keep losing.  Today should be interesting.  She is going out today just her and her grandma.  I am sure they will be gone during lunch time so hopefully that goes well.

Update: I sent her with some easy to prepare foods to her grandma's, listed above.

Update 2: She ended up spending the night with her grandma so I am unable to finish yesterday's meal list.

Wednesday, July 18, 2012

Day 10

July 18, 2012

Current weight: 170.6
Weight lost: 5.4

Breakfast:
1 Fiber Plus granola bar (120)
1 medium banana (105)
1 Cascade Ice drink (0)
Total: 225

Lunch:
1 Del Taco classic taco (130)
1 large glass water with a little bit of Crystal Lite (0)
Total: 130 (the fact she only ate this was due to the fact she got the bloody nose right as she was eating her taco).

Dinner:
2 pieces of low-calorie whole wheat bread (90)
1 packet low-sodium tuna (80)
1 tsp olive oil mayo (12)
1 tsp dill pickle relish (0)
2 stalks of celery (10)
1 tbsp almond butter (90)
1 Cascade Ice (0)
1 packet Craisins (100)
Total: 382

DAILY TOTAL: 737

ACTIVITY:
15 minutes walking dogs
45 minutes walking around mall
I am starting to get really discouraged.  The first week it felt like we were taking off a lot of weight and now for the past 3 days we have had either weight gain or no loss at all.  I am just feeling like I need to do something different because obviously what I am doing has stopped working, but I am not sure what else I could possibly do.  She is already eating about 800 calories a day and I don't want to go any lower than that (and I think it is probably not safe to go any lower).  She already exercises/moves around for about 2 hours a day.  I could increase the duration and intensity of the exercises she does and I guess I will give that a try today and see how it goes.  If I get no results from that I don't know what else I could possibly try.  I am just getting very frustrated.  I thought with all the weight she is carrying around and the lack of calories + movement that should automatically equal weight loss.  Apparently not.

Update: I e-mailed the nutritionist we have worked with in the past in the hopes she might be able to point out anything I am doing wrong or could do better.

Second update: This afternoon she got a really bad bloody nose and we almost had to go to the ER.  Outside of the walking around the mall she got done this morning I don't think I am going to push her to do anything else today.  If she gets another bloody nose today it will be straight to the ER for us so we're going to take it easy this afternoon.

Tuesday, July 17, 2012

Day 9

Current weight: 170.4
Weight lost: 5.6

Breakfast:
1 container of honey vanilla 0% fat Greek yogurt (150)
1/4 c Cheerios (25)
1/4 c blueberries (21)
1 slice low-calorie whole wheat toast (45)
1 fruit cup in water (70)
1 Talking Rain Ice (0)
Total: 311

Lunch:
2 c Progresso chicken & dumplings light soup (160)
1 c broccoli florets (20)
1 nectarine (60)
2 c 94% fat free popcorn (30)
Crystal Lite (0)
Total: 270


Enjoying lunch :)

Dinner:
1 slice low calorie bread, toasted (45)
3 oz boiled boneless, skinless chicken breast (135)
1 tbsp BBQ sauce (30)
1 c sugar snap peas, whole (26)
1 Cascade Ice (0)
1/2 c coleslaw without dressing (10)
1 Otter Pop (40)
Total: 286

DAILY TOTAL: 867

ACTIVITY:
1/2 hour walking dogs
1/2 hour walking around the block twice (appx. 0.8 miles, uphill/downhill).
15 minutes doing stairs (6 times up and down).

Total was another day of hardly any change on the scale.  She was down from yesterday but only slightly and still up from the day before.  I got some advice on diet and am going to give her slightly more food in the hopes that this will help with her weight loss.  I also am planning on ramping up the exercise some today.  I am thinking about putting restrictions on TV time as well as internet time.  So far she has earned about 5 hours of computer time so far and has yet to use any.  I think this is because she is substituting TV for internet/computer time.  I would like to get her to be more physically active but it is difficult because she will literally do nothing but sit there all day if I don't make her.

Monday, July 16, 2012

Day 8

July 16, 2012

Current weight: 170.6
Weight lost: 5.4

Breakfast:
1 c Cheerios (100)
1/2 c 1% milk (50)
1/2 c raspberries (32)
Total: 182

Lunch:
1 whole wheat sandwich thin (100)
1 packet low-sodium tuna (80)
1 tsp olive oil mayo (12)
1 tsp dill relish (0)
1 c 94% fat free kettle corn (20)
1 c broccoli florets (20)
Crystal Lite (0)
Total: 232

Snack:
Otter Pop (40)
Total: 40

Dinner:
9 yellow corn tortilla chips (90)
3 oz boneless, skinless chicken breast, shredded (138)
1/4 c fat free shredded cheddar cheese (45)
1/4 c salsa (20)
1 c cherries with pits (87)
1 Cascade Ice drink (0)
Total: 380

DAILY TOTAL: 834

ACTIVITY:
1 hour swimming
20 minutes climbing up/down stairs
30 minutes walking dogs

I am really confused today because she gained almost a pound overnight.  Yesterday she ate only 800 calories that I know of and we walked a ton.  How things have been going she should have either lost weight or stayed the same.  Why did she gain almost a pound?  I questioned her on if she got into something and she kept denying it.  I don't know if I believe her or not, though, because she had something suspicious looking stuck in her teeth.  It is so difficult.  I feel frustrated this morning because if there was ever a morning where she should have lost weight it would be this morning.  We worked her out hard yesterday and if that wasn't enough I don't know how hard I should work her out today.